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The Future

Breathe Easier Knowing There Is Hope

We’ve made a great deal of progress in understanding the genetics of Idiopathic Pulmonary Fibrosis and we have enormous opportunity in front of us.

Developing a preventative approach

A better understanding of the causes of IPF will allow us to begin developing primary and secondary preventive approaches to treating this disease.

We need your help!

Due to the discovery of genetic causes and risk factors, we have now identified the scale of the problem with specific new cases in the U.S. each year. We need everyone with this risk factor or affected family members to help us.

Join our study today!

Genetic Factors

Early diagnosis before the lung is irreversibly scarred is important and can help IPF patients manage their condition. There is evidence that the disease may be present for up to 10 years before a clinical diagnosis of IPF is made.

More than 30,000 new cases of IPF are diagnosed in the U.S. each year.

Progress is only possible with your help

  • The goal of our research is to learn to identify early stages of disease in people before there are symptoms that limit their activities, abilities and quality of life.
  • Together we can prevent future generations from having to live in fear of pulmonary fibrosis.
  • Because IPF runs in families, your participation in our study could help save the lives of your own relatives.

Facts about IPF

In a recent study, we identified early signs of idiopathic pulmonary fibrosis (IPF) in 15-20% of healthy relatives of patients with IPF.
30k - 40k
30 to 40 thousand new cases are diagnosed each year.

Additional articles about IPF

Find resources below on IPF research and future directions

How Can I Help?

Sign up to take part in our study. You are eligible to participate if you have IPF or if you have family members with the disease. By comparing your DNA with thousands of other participants, we can start to identify the genetic markers of the disease. Your participation can help lead to early diagnosis and could even save future members of your own family from Idiopathic Pulmonary Fibrosis.

For more information on participation call us at (303) 724-8569.