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Participate in Our Study

Participate in Our Study

Who is eligible to participate in the study?

You are eligible to participate if you have IPF or if you have family members with the disease.

What are we studying?

This study plans to learn more about pulmonary fibrosis and determine if some diseases that cause scarring in the lung might be inherited diseases.
We are especially interested in the genetics of pulmonary fibrosis and cases where it might run in families.
What we learn may be helpful in the future to people with pulmonary fibrosis and their family members.

What will I be doing?

You will be sharing your DNA. This means your will have a blood test.
This will help us to identify the genetic markers of the disease and lead to earlier identification and treatment for your family members who may be at risk and people with IPF around the world.
If you are a healthy relative of an IPF patient and you get a study-sponsored CT scan.

Will I get results?

At this time, we have no genetic results to share. You should not expect to get personal genetic information from this study.
If you are a healthy relative of an IPF patient and you get a study-sponsored CT scan, the study physicians will inform you about the scan results.
Our research is ongoing and we hope this will change in time. It is possible that results may be available in the future. The study team will contact you if results become available.

How do you protect my privacy?

We will extract DNA from your blood sample and then put a code on it so that your name and personal information are not visible on the tube. The tubes are stored in locked freezers until researchers use your DNA sample for a research project. Your
privacy is very important to us.

Are you testing new drugs for IPF?

We are not currently testing any treatments for pulmonary fibrosis and we do not provide clinical care through our research. We are not yet testing any treatments in humans.
We are working to better understand the genetics of IPF.
It is our plan to study and develop treatments based on genetics, and we have begun animal studies of new therapies for IPF based on our genetic findings.

Who monitors the study?

This study is watched over by the investigators running the study and by our ethical review board (COMIRB). You can call COMIRB if you have questions at 303-724-1055.

How Can I Help?

Sign up to take part in our study. You are eligible to participate if you have IPF or if you have family members with the disease. By comparing your DNA with thousands of other participants, we can start to identify the genetic markers of the disease. Your participation can help lead to early diagnosis and could even save future members of your own family from Idiopathic Pulmonary Fibrosis.

For more information on participation call us at (303) 724-8569.